Yesterday, we launched Hack It Up!, our new online colloboration and innovation platform designed to bring the CF community together so we can all work on the challenges cystic fibrosis brings.
Today our Community Manager, Emma Lake, who will be acting as the facilitator on Hack It Up! introduces herself and the platform
Hi, I’m Emma, the
facilitator at Hack It Up! I have cystic fibrosis and I believe passionately
that everyone with the condition and those who help and support us, both at
home and in hospital, should help shape the future, through the
discussions and decisions that affect our lives.
and experience is uniquely valuable, we are the ones who are truly experts in
living with cystic fibrosis and we need to drive change, delivering impact
based on our needs and in our interests.
That’s why I’m
thrilled to be a part of Hack it Up, an innovative platform to make our voices heard on the issues that matter.
I am really
excited about the first two challenges we have to discuss, and can’t wait to
start exploring ideas and sharing our collective expertise.
In the first
challenge, we want to find out the tricks and techniques people have developed
to manage their CF while still living the life they want to lead.
people with CF, healthcare professionals and industry, the Cystic FibrosisTrust is developing a project called SmartCareCF, to find better, smarter ways
of managing care. Before we look ahead though, we need to look at what’s
happening right now. What works for you? How do you use technology to keep one
same time, we are exploring how being active can help keep lungs healthy for
longer. In our second challenge we want to know what activity means to you.
What do you do to try and stay healthy? How does it make you feel?
stuck in! Join us in Hack it Up and give us your views and share your experience– there’s a whole community waiting to listen, to learn and to connect.
joined, please invite other people you know who understand life with cystic
fibrosis, such as parents, partners, friends, employers and colleagues. I’ve
already invited my mum, my husband and my best friend!
can change the world of cystic fibrosis and shape a better tomorrow. We
just have to get stuck in!
This is an edited version of a blog post from Hack It Up! Join the conversation at www.hackitup.org
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